Unfortunately Ted had another horror night.
He screamed and cried pretty much all night. The nurses said they’ve never seen a child so upset overnight. It was so arduous. He is terrified of doctors and nurses touching him. He is not the happy boy he was. He is truly traumatised at the moment.
My friend Kelly came to visit us today wih all sorts of wonderful gifts and we took Ted downstairs to visit the farm animals and the bandaged bear workshop.
Just look at that happy face! Short lived unfortunately because we had to take him for yet another blood test.
Since the test he has been crying and screaming for hours and saying the most heartbreaking things.
His wonderful play therapist was shocked at the decline in his mood and how poorly he handled the test. The child is truly broken. Teddy is a mess and if someone can’t do something productive to help him soon I do not know what I will do.
His INR is still not high enough so the Warfarin isn’t at a therapeutic level so they want another test on Monday. It it beyond terrible the child has had enough! All he talks about is needles and dressings and he begs me to stop people hurting him. He is just so terrified. It is an awful phobia to have when you are stuck on a drug that requires constant monitoring via blood tests.
I’m at a loss.
So so sorry to hear how sad and traumatized poor Ted is, and how heart breaking it is for you to see. I hope they can find a way to put him more at ease, and soon!
Poor little man.How sad you must both be exhausted.Surely there must be someone to help you. Love to you all Grumpa and Gra
Tina Ashlin said:
Wish I could do something to help.
Heart breaking. I hope someone is able to do something to ease poor teddy’s load. It truely is a horrible time for you all. Hang in there beautiful. Wish I could help in some way.
Poor little thing. Can they not give him a little sedative at night? Has he still got any lines in? A whiff of midazolam pre venepuncture? If they gave him a sedative at night to help him sleep – they could try taking the bloods then when he is a bit dozy (with emla!). Surely they can make it easier. Wishing you all the hugs I have. Hoping tonight is better. xx
No lines Susan and they won’t give him anything, they will only give midaz for the drain removal but not for the venepunctures because they are every other day and they say he is on this long term drug now…
Myfanwy Zrinski said:
Sending some hugs from Perth. I think of you guys often and I hope today is better than yesterday