Said Ted this afternoon.
He had a rough time with pain today and then was very disappointed that he wasn’t allowed down to visit the Starlight play room on account of his Morphine infusion.
Despite his low mood he has on balance had a good day. He had a canula removed and was able to sit up in bed for a minute and then he sat in a chair for a few minutes. This is progress!
Ted was very lucky to have a visit with The Barretts today. We are both looking forward to watching all the shows they brought in the USB. Clever idea!
When Tabitha came to visit she sat with Ted in the bed until we got in trouble for violating the rule against non patients sitting on patient beds.
The same rule Richard got in trouble for violating today. So I will make sure I am sitting on that bastard bed tomorrow for the cardiology round. On principle.
To cheer Ted up after his disappointment over not visiting the Starlight room, we had Captain Starlight come to visit Ted. He loved the balloon characters she made for him.
Lots of the nurses call him Super Ted now. Such a little hero:
We were thrilled to have a special visitor tonight. Andrea arrived with dinner, snacks, goody bags of treats and best of all a remote control car for Ted to zoom around from his bed. The first real smile we have seen since his surgery. Gold star Andrea!! Thank you so much.
We are hoping for a quiet night from Ted tonight without his saturation monitor alarming all night. We have taped his oxygen prints to his face. Hopefully this will stop him ripping them off all the time.
To give you an idea of space here is a photo showing how awkward the shared room is. I was told today we have too much luggage. There is no storage dammit. I have one small bag for me. The rest is basic items for Ted. This is madness for weeks. Madness!
Tomorrow will see Ted having more blood testing and probably the removal of the left pleural drain.
Til then … Good night from the sardine tin at Westmead xx
Can’t believe they dared scold Tabby and Richard for sitting on the bed. Seriously???? Tabby and Teddy looked adorable together. Very cramped quarters… Just keep saying this too shall pass! X
Oh WOW Carolyn you must have bitten your tongue into pieces by now. What possible harm is there from Tabi sitting on the bed. How bloody rude. I love Super Ted’s mask and matching doll with the same pyjamas – how adorable. Andrea was definetely thinking when she came up with the idea of the remote control car – that is awesome.
Yes our hideous pink shower thongs are just taking up waaaay too much room Carolyn 😉
Hope you all manage to get some rest tonight
Carrie Jelley said:
I am so thrilled Captain Starlight came to visit Ted! I asked my girlfriend at Starlight to work her magic, she has fallen in love with Ted after hearing how wonderful he is from us! Hoping another tube comes out tomorrow, such positive steps in his recovery. Sending bigs hugs Caroline, hope you get some sleep and a decent coffee in the morning!
Andrea Clayton said:
Thanks for letting me have a visit with Ted tonight! It was such a treat to get in a little visit, despite your “opera singing” roommate. Here’s hoping she is asleep all night.
I’m so glad the car was such a success! Let me know if you run out of batteries – additional courier service to Westmead possible!
Super Ted is such an apt name! Hoping for continued positive progress posts. Would be good for staff there to read your blog so they understand the experience from a parent’s viewpoint…..! Take in more stuff as it’s Ted’s home away from home for the next little while. Strength to you both. Sharon x