FABULOUS NEWS- Ted’s last chest drain was removed just now.
This is the best news ever because it means we are VERY close to discharge. His lovely surgeon said that in light of his fragile emotional state he will fast track his discharge once the drain is out.
So I do not think we will be staying a week for observation I think we will be allowed to take him home in a day or so and just return as an outpatient. This would be the best approach given his state.
Because he was given Midazolam for the chest drain procedure the doctor also drew his blood so that we avoided another meltdown tomorrow.
We now await the INR results and I’m praying we get a good stable result this time…
This morning we went to a heart fundraiser here at the hospital and Ted was thrilled to receive a heart balloon, a teddy bear, a party bag and this cute tiger face paint!
We are so so happy to be on the homestretch now. Feeling incredibly fortunate to have such a record breaker. For a kid wih HLHS to have a non fenestrated Fontan and have all his drains out by day 11? Pretty miraculous. Now we just have to get this beautiful boy home to mend his spirit and calm his nerves after what has been a rather traumatic week for the little tiger.
I can’t wait to be given the nod to get him home. I know we can take great care of him there and he will make a beautiful recovery.
That’s wonderful news!!! So happy to hear the great news xx
So happy for you all!
Teri Cooper said:
Just the best news. So pleased the little fella is making such great progress. Wonderful news Caroline. Love Teri & Kaylene xx
Great news with a great photo of the little tiger smiling! We’re ready to visit at home when the time’s right. Sharon & Will
Jan Brandon said:
Hi Carolyn, I have been following your blog with great interest and am so pleased to hear your latest news. Sending our best wishes for the next stage of your amazing journey at home. I am sure Ted will enjoy waking up in his own bed at home with all the family around! Go Ted 🐯 xx
Fantastic news! Yay!
I’ve always said he’s the best and todays news proves it.How great is this?Please give our little hero the biggest hug(not too tight though).Gra is looking forward to see him friday’With all our love and best wishes.Gra and Grumpa xxxxxx
What an amazing update on your brave little tiger.
Andrea Clayton said:
Yeah yeah yeah!!!!
Home can’t come soon enough. 🙂
Fantastic news! You won’t know yourself when you get home. It’s the best place for you all. 🙂
Melanie Jewell said:
So glad to read this update tonight Carolyn. Really pleased for you and Ted to get back to the comforts of home ASAP. And what a little miracle he is – 11 days and already doing way better that expected. What a champion! Lots of love to you both xxx
Woohoooo Go Teddy….!!!!!
Congratulations Ted! Amazing result. Xx