For those who followed our Fontan recovery you might remember Ted suffered terribly with night terrors after his operation. It lasted a few months and was distressing for everyone. He had a lot of anxiety about bedtime generally after that last operation. 

Now poor little Ted is struggling with the recovery after this operation and he is having the night terrors again. So sad. And very very exhausting. He screams and cries which obviously hurts his poor little throat even more. Such a shame. 

I’m averaging two hours sleep a night. Ted is very irritable during the day. I am really looking forward to him feeling a lot better. We all really miss Rich and wish he was here as well. 

Here are some sad little videos. The second one is not for the squeamish. It shows what his throat looks like at the moment. Yuck.