Rudyard Kipling’s “If-” is one of my favourites. Reminding myself that nothing stays the same is a prudent way to cope with the triumphs and disasters of our journey with Ted’s special heart.
If you can dream—and not make dreams your master;
If you can think—and not make thoughts your aim;
If you can meet with Triumph and Disaster
And treat those two impostors just the same;
If you can bear to hear the truth you’ve spoken
Twisted by knaves to make a trap for fools,
Or watch the things you gave your life to, broken,
And stoop and build ’em up with worn-out tools:
This week following an entire school holiday period without even a sniffle, Teddy now has a cough. I have spoken with his paediatrician and his cardiologist and his surgery is now in doubt for the 18th of February.
Rescheduling isn’t particularly simple as it involves coordinating a massive team of specialists not to mention our own family logistics. So here I find myself in an even more uncertain state of limbo than I was a week ago. Ted now has until next Thursday to lose the cough.
A harmless little cough is enough to halt the Fontan journey so we need it gone. We have five days. Get your prayers on people!